HumGen

HumGen.org is the website of the Centre for Genomics and Policy, which is affiliated with McGill University and the Génome Québec Innovation Centre in Canada. The Centre was launched to respond to the urgent need for informed public policy and analyses on socio-ethical issues related to human genetics research at the international, national, and provincial levels. The HumGen website provides policy makers and the public access to policy statements concerning genetic research.

History

The Centre for Genomics and Policy

The development of the HumGen.org website is part of a larger Centre for Genomics and Policy project, which was formerly affiliated with the Centre de recherche en droit public (CRDP) of the Université de Montréal under the name Genetics and Society Project.[1]

HumGen.org

Faced with rapid advances in human genetics research, policy makers continue to struggle with a host of complex ethical, legal, and social questions. The HumGen website gives policy makers and the public access to legislation, policy, guidelines, and recommendations from government and nongovernmental organizations worldwide.[1][2]

The website is a unique source of international genetic policy information and has been cited as a critical resource for geneticists who are interested in examining the wider implications of their work.[3]

The Centre for Genomics and Policy

GRaPH-Int

The Genome-based Research and Population Health International Network (GraPH-INT) is an international community of population health experts. GRaPH-INT promotes the use of genome-based research from the sciences, humanities, and social sciences to improve population health.[4]

The website was launched in June 2006. In 2007, development began on the BioPortal search engine, aimed at optimizing searches on public health genome-based subjects (ethical, legal and social issues, research, literature, epidemiological data, and news and events).

References
  1. Avard, Denise (2001). "Genetics and Society Research at the University of Montréal". Biotech (June/July): 48–49.
  2. Avard, Denise (2000). "Genetics and Society Project". Community Genetics. 3 (3): 102–104. doi:10.1159/000051115. PMID 11831264. S2CID 28151735.
  3. Baxter, C (2003). "Are You Aware?". Nature Reviews Genetics. 5 (4): 334. doi:10.1038/nrg1079. S2CID 38588188.
  4. Burke, W; MJ Khoury; A Stewart; RL Zimmern (2006). "Bellagio Group. The path from genome-based research to population health: development of an international public health genomics network". Genetics in Medicine. 7 (8): 451–458. doi:10.1097/01.gim.0000228213.72256.8c. PMID 16845279. S2CID 863513.
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